29Th of July we have arrived in ST Georges Hospital and were waiting for an operation. We were told he was going in at afternoon. He had been starving since last night and anybody who has a child on steroids will know what does it mean not to give them any food. He is absolutely starving and it is hard to explain to him why mummy and daddy are so mean and not giving him anything to eat or drink. He is not allowed even a water.
The nurses are not very nice in here and nobody is telling us what is going to happen. As it gets to 6pm we gather that he is not going in after all, and doctor confirms it. Obviously we are upset because he has been starving for so long. We were told he is first on the list for next morning.
30Th of July we are still waiting and only by 5 o clock in afternoon he is in for operation ( last on the list, not first like we were told). The operation will last for 2 hours and he will have his line removed and other put in on the right side.
We are so upset with nurses in this ward, they don't seem to care about patients. Earlier this day they have burned his hand in two places. I just can not believe how many bad things are happening to Christian. Day before he had Amitop cream put on his arm in two places, it numbs the area, before they put in cannula. He had developed a red rush and I was told it is allergic reaction. So next day when he needs more blood tests and they put the cream in the same areas ( they can not use other arm because of the blood clot). I am told by the nurse that it is another cream Emila , because obviously he can not have Amitop.
But turned out it was Amitop and he has burns and they still try to put cannula in his burned arm. Christian is screaming and crying like never before, and they don't care. She is pushing needle in his burned arm, it must hurt so much.
Anyway he is out of the theater safe and everything went well ( apart from cannula in his left arm, that has thrombosis and not allowed to be touched let alone cannula, and burns or bruises ( doctors not sure) all over his body.
We just don't know how much more we can take. And then when I go to ask one of the nurses when Christian will have his injection for the blood clot, she says I have done it.
I just can't believe what I am hearing, I have never done an injection in my life and now they telling me I have done it!!
1st August still at St Georges hope to go home today. Christian has cried a lot, but not because of the operation and the scars, but because of his burned arm, it is hurting so much. As if he doesn't have enough to go through, bloody careless nurses!!!
Every hospital you have doctor coming in a morning to see a patient, but not here. It is nearly 2pm and nobody has been to see my son and he had surgery day before!! This is when I broke down..Adonis is on his way, nobody can believe what is going on in this hospital, Adonis cousin Dina calls one of the managers and makes a complain. Sister of the ward comes in and talks to us and apologises...anyway I am happy to see the doctor at last and she is from RMH and knows us.
Although Christian has a bit temperature she let us go home, have a shower and go back to our local hospital and that is what we do and hope that we will never have to go to this hospital again( probably we will at the end of his treatment to take the line out).
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