Back home July 2008

After 17 days in hospital, last 5 of them in isolation, because Christian developed a line infection, we were allowed to go home.

Oh and also he had contracted virus from me and was very poorly, coughing up the blood, high temperature. He had to be given an antibiotics and after few days was feeling better.

It was heartbreaking to see him from feeling well suddenly go very poorly. We were told by doctors, that he will become worse before he will get better.

Christian didn't look like the same boy, he has had his beautiful curly hear cut off. We were told that in next few days they will start coming off, and I didn't want to see his locks on the pillow.

Christian is feeling not too bad, a bit tired and constipated, but happy to go home.

Christian before and after the haircut ( not very happy about it)

I had mixed feelings about going home happy, but also very scared, I felt he was safe in hospital and didn't know how I will cope at home. I'm sure other parents feel the same way in my situation.

It was Sebastian's birthday in 2 days so we spend the next day preparing for his party. He was having all his class over and we didn't think that canceling it would be fare on Sebastian.On Sebastian's birthday Christian and I stayed upstairs in a bedroom while Sebastian had his party downstairs.

After his party had finished we received a phone call from RMH (Royal Marsden Hospital) that blood tests showed he had 2 line infections so had to go back to our local East Surrey Hospital.

Christian had more antibiotics and we stayed for another 5 days.

During next week he needed blood and platelet transfusions. He became very weak, stoped talking, walking, still very constipated and screaming and wanting me to change his nappy every 15 minutes, because he thinks he has done number 2, but he hasn't and I just have to pretend that I am putting new one on otherwise he will scream. And this goes on during the night too , so no sleep. But my lack of sleep is nothing compare to his suffering.

He would sleep in my bedroom upstairs an watch " The Monster INC" over and over. He also would rub his face until his skin would become sore and then he would rub it even more until it starts to bleed. It looks like a psychological thing, because of how much he has been going through lately.