October 2008

1St of October Christian finally started his next block of chemo. This block is less intensive so less visits to hospital. He will start his oral chemo and I will have to give it to him. I have to wear protective gloves,apron, try not to inhale it and have to be careful not to spill it and dispose in a special bag. I asked the doctors what could it do to me if I am not careful and they sad it could affect my ovaries. I am also supposed to wear gloves when changing him, because obviously it stays in his urine and dispose nappy's in bags.


Anyway we had so much struggle with him taking medicines, I have to put them in the syringes and he would scream and kick and spit them or put his tongue in front or not open his mouth. We used to just hold him and bit by bit put it in his mouth, but he always managed to spit some out. At his age it is difficult to explain to him, that he needs this medicines to get well, he is to young to understand and they taste awful too.


Doctors were getting concerned, because if he is not getting enough medicines inside him it will affect his treatment, so we were told to put tube down his nose in to his stomach.


We asked them to give us one more try and tried our hardest to make sure he gets all of it and it paid off. He started to accept that he can cry or kick or spit but he is having the medicine and he started taking it and not spiting it. It took us 3 month, but it was worth the struggle.


Christian is feeling better, playing again, running around being very active, like the child in his age should be. His hair also are starting to grow back.





22 October Christian started to complain about his leg were he has his injections. Basically he has insuflon in his thigh ( little tube, so I don't have to stub him every day when I give an injection and it is changed every week). We have had some problems with this insuflon before sometimes if his platelets are low he will bruise or bleed from it. Couple of times when it was taken out he would not stop bleeding for all day until he would get platelet transfusion.


Anyway I went to check his leg, because it was hurting him so much he stooped walking and discovered very red bruise. It looked bad so I called the hospital and he was admitted.

They were not sure if it was an infection or allergic reaction to insuflon or the medicine itself. We stayed in hospital overnight and by morning the bruising was better so they put insuflon in another leg and let us go home. By next day bruising appeared on other leg also, so went to hospital again ant they decided to try just injection without insuflon. However after 2 injections he reacted again and finally they decided that it must be medicine.

We had to go to RMH for a scan and it showed no blood cot :))))) so we were told that it is OK to stop it altogether. Of course we are very happy because this was becoming a big problem and lot of pain for Christian. On the other hand we are a bit concerned because he seems to be developing allergic reactions to medicines.

second bruising, the one we stayed in hospital with was even worse