March 2009

March wasn't a very busy month for us. Christian had Vincristine ( chemo drug) on 19Th of march and his Lumbar puncture on 20Th of March at Royal Marsden. All went well, he also is 5 days on steroids and 2 chemo drugs orally - one every day, and other only once a week.

6Th of March nurse came home ( like they do every Monday) and took some bloods, his neutrophils ( blood cells that fight bacterial infections) were very low 0.1 ( normal level 1,5-6) so his oral chemo had to be stoped. It has to be above 0.75 to continue. Anyway anything under 1 and they are neutropenic- which means their immunsisstem is not doing it's work and they are very easy to catch anything, so we have to avoid crowded places.
Luckily he didn't have temperature, so we didn't have to go to hospital.

Blood tests also showed very high ALT ( shows liver function) normal level is up to 56 or so , but his was 1300!!! Luckily that has been drooping down so no treatment was needed.
He still has got rush, that comes and goes, it doesn't seem to bother him.
He hasn't been eating at all, not even chocolate, nothing solid, he just refuses. So he is having protein milk shakes that dietitian prescribed. He doesn't like them so we have to give it to him with syringe ( he'll take anything from syringe:)) bless him).

10Th of March was Christians 3rd Birthday, his cousin came over and Christian had lots of fun!!!