Cheeky
loving the snow
Christian's birthday
with mummy in the park enjoying the ice cream
Tuesday, 21 April 2009
Pics of Christian
Christian with daddy at Royal Marsden Hospital
Cheeky
loving the snow
Christian's birthday
with mummy in the park enjoying the ice cream
Cheeky loving the snowChristian's birthday
with mummy in the park enjoying the ice cream
Friday, 17 April 2009
April 2009
Today 17Th April Christian started his 2Nd Delayed Intensification. He had Lumbar Puncture wake up screaming from general anaesthetic, but calmed down quite quickly, he also had 2 other chemo drugs, one in his thigh as injection, other in his blood stream, this one took an hour and usually makes you sick so Christian had anti sickness , but by experience he is not sick from it.
This block of chemo will last for 7 weeks and is the last intensive chemo Christian will have. After this he will go on maintenance for 2,5 years. We were dreading this one , because of the side effects and risks off infections, but also we are glad that this is the last intensive chemo therapy for him.
He also is starting on high does of steroids tomorrow for 7 days :(( so I'll have little steroid monster home, hope he will eat something, because steroids makes them soo hungry. I remember at the beginning of his treatment when he was on very high dose of steroids for a month he used to wake up during night and ask for cheeseburger or pasta :) and I used to make them for him.
Monday 20Th we are going to East Surrey Hospital for more chemo- this is the one that makes him constipated.
THANK YOU
I would like say thank you to everybody who have been sponsoring me!!!! Still haven't reached my target, so if anybody able Please sponsor me, I'll be very grateful. I'm running race for life on 4Th of July and my sponsorship page is www.raceforlifesponsorme.org/ilzejacovides
Also thank you to Adonis colleagues for lovely messages!
This block of chemo will last for 7 weeks and is the last intensive chemo Christian will have. After this he will go on maintenance for 2,5 years. We were dreading this one , because of the side effects and risks off infections, but also we are glad that this is the last intensive chemo therapy for him.
He also is starting on high does of steroids tomorrow for 7 days :(( so I'll have little steroid monster home, hope he will eat something, because steroids makes them soo hungry. I remember at the beginning of his treatment when he was on very high dose of steroids for a month he used to wake up during night and ask for cheeseburger or pasta :) and I used to make them for him.
Monday 20Th we are going to East Surrey Hospital for more chemo- this is the one that makes him constipated.
THANK YOU
I would like say thank you to everybody who have been sponsoring me!!!! Still haven't reached my target, so if anybody able Please sponsor me, I'll be very grateful. I'm running race for life on 4Th of July and my sponsorship page is www.raceforlifesponsorme.org/ilzejacovides
Also thank you to Adonis colleagues for lovely messages!
March 2009
March wasn't a very busy month for us. Christian had Vincristine ( chemo drug) on 19Th of march and his Lumbar puncture on 20Th of March at Royal Marsden. All went well, he also is 5 days on steroids and 2 chemo drugs orally - one every day, and other only once a week.
6Th of March nurse came home ( like they do every Monday) and took some bloods, his neutrophils ( blood cells that fight bacterial infections) were very low 0.1 ( normal level 1,5-6) so his oral chemo had to be stoped. It has to be above 0.75 to continue. Anyway anything under 1 and they are neutropenic- which means their immunsisstem is not doing it's work and they are very easy to catch anything, so we have to avoid crowded places.
Luckily he didn't have temperature, so we didn't have to go to hospital.
Blood tests also showed very high ALT ( shows liver function) normal level is up to 56 or so , but his was 1300!!! Luckily that has been drooping down so no treatment was needed.
He still has got rush, that comes and goes, it doesn't seem to bother him.
He hasn't been eating at all, not even chocolate, nothing solid, he just refuses. So he is having protein milk shakes that dietitian prescribed. He doesn't like them so we have to give it to him with syringe ( he'll take anything from syringe:)) bless him).
10Th of March was Christians 3rd Birthday, his cousin came over and Christian had lots of fun!!!
6Th of March nurse came home ( like they do every Monday) and took some bloods, his neutrophils ( blood cells that fight bacterial infections) were very low 0.1 ( normal level 1,5-6) so his oral chemo had to be stoped. It has to be above 0.75 to continue. Anyway anything under 1 and they are neutropenic- which means their immunsisstem is not doing it's work and they are very easy to catch anything, so we have to avoid crowded places.
Luckily he didn't have temperature, so we didn't have to go to hospital.
Blood tests also showed very high ALT ( shows liver function) normal level is up to 56 or so , but his was 1300!!! Luckily that has been drooping down so no treatment was needed.
He still has got rush, that comes and goes, it doesn't seem to bother him.
He hasn't been eating at all, not even chocolate, nothing solid, he just refuses. So he is having protein milk shakes that dietitian prescribed. He doesn't like them so we have to give it to him with syringe ( he'll take anything from syringe:)) bless him).
10Th of March was Christians 3rd Birthday, his cousin came over and Christian had lots of fun!!!
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