His blood counts are not so good, low hemoglobin and platelets, so he will possibly need a blood and platelet transfusion next week. He has got lots of bruises ( due to low platelets) and is a bit pale in colour but not too lethargic.
He also is starting to try some foods, which we are very happy about!
We took donations from Sebastian's school to East Surrey Hospital and they were very pleased!
Thank you to everybody who donated !!!
Christian is getting very frustrated, he is fed up with staying home all the time ( it has been more than 7 month), but unfortunately due to the high risk of infections,especially this time off year, it is not wise to take him to nursery or any other public places.
It will not be like this forever, but for time being the safest for him is to stay home. In his condition infections, any other illnesses, especially chicken pox or measles could be fatal, so it is not worth the risk.
I know that at some point I will have to take him out but I do get very nervous about him being around other people, because of the risk of infections and germs. I'm sure that parents in the same situation as we feel the same.
Obviously Sebastian can not have any friends round either, so it has affected him as well. The are no family outings, no parties, no social life what so ever, but we know that Christian's health is all that matters now and we will have one massive party once his treatment is over :))))
Christian did not want to take the picture :)
All the donations from St John's Catholic Primary school in Horsham
East Surrey hospital's Outwood ward's play specialist Claire and one of the nurses with some of the donations ( too many to put all in a picture)
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