25Th December Christian spend Christmas day at home, not feeling very well, very constipated. He didn't enjoy the day much , didn't even care about the presents, but we were glad to be at home.
26Th December Christian woke us up at 3 am crying , because of the constipation and I checked his temperature , because he seemed hot and it was 39 so we called hospital and were told to go in.
The nurse couldn't get his line to work , so she asked another nurse to try. Christian ended up with 4 nurses and a doctor unable to access him and therefore he needed cannula in his arm. It took few attempts to put cannula in his arm, because his veins are so tiny.
He also had an ex ray to see why his line is not working and started 3 antibiotics every 6 hours.
27Th December still in east surrey hospital, Christian still has temperature and is very constipated despite me giving him 2 medicines to relieve the constipation. So far every doctor is telling me his belly is soft and he doesn't seem to be constipated, but I know he is.
28Th Christians temp seem to be on the rise, he has paracetamol every four hours , but temp keeps going up. He also has a bit of cough an runny nose, still on antibiotics.
29Th Oncology nurse comes and tries to access him and she is successful Hallelujah!!! Adonis said if I wouldn't be there he would of kissed her ( cheeky).
Anyway the reason why we were so happy is because we were booked to go to St George's Hospital in London to have his line removed!! That would have been a disaster! It is his second line after all and we hope it will stay until end of his treatment although it has started to play up.
Basically as soon as nurse puts a needle in it should bleed back, but it doesn't he has to sit down, lift his arms, change positions and than it eventually bleeds. This is what happened with his first line.
Christian still has high temperature it should have settled by now. Usually by day 3 he has no temperature , but this time antibiotics doesn't seem to work. He is still constipated, although doctors tell me otherwise.
30Th He has high temp in a morning it was 39.7 , we were told he will have to have ultrasound scan to his abdomen and CT scan off the whole body. Because the antibiotics are not working they are now wondering whether he has a fungal infection and will start on his 4th antibiotic against fungus. Scan reveals that everything is fine apart from that he is very very constipated, which I'm glad now doctors will believe me. He is given Movicol to relieve his constipation, he is still in a lot of pain and refuses to sit up or walk.
31st New Years eve Christian still has got temperature so no chance of going home today.
He is still on 4 antibiotics and very constipated. Nurses close up play room for us, we need to make Christian walk to help his bowels to move. He cries in a play room and asks me to pick him up but I keep running away and his running after me and than we hear this noise...and smell..:)
So I change him and we are off to play room again. He did open his bowels 4 times , and even started playing with cars ( he hasn't been playing for a few days). So that's a good sign!
1st January Christian's temperature is going down, he is feeling better and playing. We still can not go home , but hopping in couple of days we will if his condition keeps improving.
Overall good start to the New Year !!!
2ND still in hospital, Christian keeps improving, no temperature and still a bit constipated but not in a pain, like before.
3rd January going home!!!!!! Christian stops antibiotics. His liver is showing signs off being affected probably from anti fungal antibiotics, but doctors hope it will improve.
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