October 2009

Hi all. Again I do apologise I haven't written for some time. I thought I do a quick update before I forget it all :)

On 7Th July Christian started his maintenance cycle 1 - it is basically mainly 2 oral chemo drugs I give him at home one every day and other once a week ( except the week he has LP - chemo in his spine).
He also has Vincristine ( intravenous chemo) and steroids for 5 days ( that's when he becomes our little steroid monster-very bad tempered).
Also once in 3 month he has Lumbar Puncture ( chemo in his spine, it's to prevent leukaemia going to the spinal fluid and brain) and it is done under general anesthetic.

So basically maintenance treatment which will last for next 2 years is nowhere as intensive as treatment he has received for the first year, therefore he shouldn't have such a horrible side effects and also less time spent in hospital.

We did end up in East Surrey hospital for 3 weeks from 27Th of July till 18Th of August.
Christian was admitted with Shingles, suffered kidney problems due to the antibiotics, was on the drip for 2days to flash the antibiotics off his body.

Than he still had to continue antibiotics and also had a line infection so had to have even more antibiotics. Basically I wont go in to detail, i was a bit of a scary time for us , because of his kidneys, but thankfully Christian recovered.
Can't believe he had shingles, but then again when your immunsistem is so low you get all sorts :(
Anyway he did complete his maintenance cycle ( although he missed lots of chemo due to being unwell).
On 23Rd of September he started his second maintenance cycle. He still is on a lower dose of oral chemo than he should just because he is very sensitive to it and they don't want blood levels to drop too low.
On 5Th of August he had his LP under general anaesthetic -all went well.
He is feeling well, full of energy :))

His hair,eyelashes and eyebrows have grown back and he looks so gorgeous. I'm just wondering if his hair will be as curly as before or straight this time???
I would also like to thank everybody who donated for race of life. I managed to raise 210£ so thank you very much!!!

We would also like to say MASSIVE THANK YOU to Adonis colleagues Neil Attwater & Neil Thornton for raising money for Christian's fund for CLIC Sargent Charity!!!!!!!!!!!!!
They did a triathlon on September 27Th consisting of 400mtrs swim, 25k bike hike, 4k run. I hear that they did very well!!! Thank you guys and thank you to all at Adoni's work who have been donating!
I will put donations on Christians Fund and post the details later on.