24Th February

Just a quick update on how Christian is doing.

24Th February Christian started his next block of chemo - interim maintenance No 2.
He had his lumbar puncture ( chemo into his spine under general anesthetic) and bone marrow ( sample from his bone marrow to see how he is doing).
All went well, Christian was very excited, he loves the Hospital's play room :)) and did not want to leave, he was crying so much, bless him:).

25Th East Surrey for more chemo Vincristine-this one has nasty side effects, like constipation and aches all over the body.
Christian also had appointment in Royal Marsden to see a dermatologist , because of his rash. There have been different opinions from different doctors and they are not sure what that rash is.
We have been using steroid cream and the rash gets better but spreads elsewhere. Anyway we are told by dermatologists we are going to treat it as eczema, it is likely that his skin has become very sensitive due to the chemo drugs. So we have more steroid cream to take home and hope it will clear.

Christian is also on steroids for 5 days and 2 types of oral chemo one every day and one once a week.
He has been very constipated for a few days and not very happy. Steroids make him very short tempered and he is screaming a lot , everything irritates him and he has got a very very loud voice, he better be a singer :))
This block lasts for 8 weeks and is not a very intensive one so therefore his hair, eyelashes and brows started growing back :) They will fell out once more, when he will be on his last intensive block.

2Nd March nurse came to take his blood, his blood counts are the best they have been in a long time. This means he has got some immunity and we took him to the park first time since his diagnosis and he was soo happy and running around , forgot about the constipation.
We were glad he moved at least, at home because of the pain due to him being constipated he would not walk just sit. I hate him being constipated, because I can see he is really in pain and I can not help apart from giving him medicines to relieve it, but it takes few days to work.